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Wilmington girl’s rare genetic condition featured on ‘Good Morning America’

#Genomics Transforms a Young Life  #SNRTG #BigData #RareDisease #science #genetics $tech

  • We went through a lot of emotions,” Greene said. “
  • When Cara first got sick, “It was so sudden that the first thing our pediatrician thought was that she may have a brain tumor,” Kristen Greene said.
  • The Greene’s segment on “Good Morning America” focuses on the emerging field of precision medicine.
  • And the Greenes are working with other parents of children with the rare disease to launch a support foundation.
  • Cara Greene is one of less than 70 patients with Brown-Vialetto-Van-Laere syndrome, a rare disorder that stole her ability to walk.

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@Primary_Immune1: “#Genomics Transforms a Young Life #SNRTG #BigData #RareDisease #science #genetics $tech”


Cara Greene is one of less than 70 patients with Brown-Vialetto-Van-Laere syndrome, a rare disorder that stole her ability to walk. Genetic sequencing led to an effective treatment.


Wilmington girl’s rare genetic condition featured on ‘Good Morning America’